To find other online communities, type stroke caregiver online support into your favorite search engine. My advise is: if ur doing ur best u can, involved in ur husbands quality of his personal medical care then "NO ONE" else matters. If something potentially serious happens then only then contact them. It's been almost 20 yrs nothing is better or worst. The stress these two are causing is to much but I don't know how to handle it. good Morning, My mother had a stroke at age 50 and my father was her caregiver for many years... (dementia followed) Her stroke was massive, leaving her paralyzed on the right side. I remember like it was yesterday, how difficult it was for her to try to form words. Check out the Sing a Long - Songs of Yesterday, your loved one will enjoy these activities.
If you or the person in your care is religious, your church or synagogue may be one of your best resources. Lost his speech motor skills in right hand walked w/a limp. As my husbands health care proxy, I hav given the staff there permission to discuss any questions his children my hav. She had to learn to talk, walk and do everything with her left hand. During her struggles I think the most important thing my family had to learn... Unfortunately, I also remember (in the beginning) trying to help her...
You can bounce ideas off the group, ask for suggestions, or just vent about what's bothering you.
And if you find yourself connecting with another caregiver, you can strike up a friendship outside the group.
To find a support group in your community: If the person in your care would like to talk to other stroke survivors, you may be able to kill two birds with one stone by finding him a support group.
There are straight, gay and even bisexual polyamorous couples and individuals.If your community has a multipurpose senior center, you can take advantage of a variety of services and programs. He does not have any hobbies and cannot read any lengthy articles and comprehend them. Classes and group activities will help the stroke survivor socialize and stay active, and you'll have the opportunity to meet other caregivers. You'll be amazed by the sheer number of discussion boards and chat rooms that are out there. They are going behind my back and telling people I am not taking care of him. We had to learn to say nothing and let her take her time, (sometimes a long time) before the words came to her. The hobbies my mother once did, she could no longer do, she could not handle the cards and puzzle pieces.(her favorite hobbies) From observing her struggles, I developed oversized cards and simple puzzles with large pieces.For starters, check out the American Stroke Association's discussion boards. Between visiting him caring for my 96 yr old mother ( in her home) having 4 step children who don't bother with there dad, I know what ur going thru. Mind you 1 lives out of townand we had barely spoken to her in 8 years and the other one we hardly ever saw in the first place. My mother was a courageous lady, she wanted to do everything herself and she tried up to the end. One of my mothers favorite songs she used to sing was "Let me call you Sweetheart" and You are my Sunshine.
Being single and man-free doesn't negate a straight woman's heterosexuality, for example.